Dear readers,
A diagnose has been given.
MS MARBURG the kind of ms that you can find only within +/_ 20 people a year around the world.
We are desperately looking for a right way of treatment.
At the moment Tysabri is given. At the moment she shows no improvement. She is getting worse.
At the second week of Tysabri she showed a little improvement and was better at speaking and swollowing.
Whe are at the point to try everyting that could posssibly help her.
We hope somebody can help us with the right treatment, or knows from own experience what to do!
We hope that doctors around the world will think with us and share they’re toughts with us.
If there is anybody who can help us with a posssible treatment, please contact us!
You can reach us by posting a message at this blog. Or mailing to t.brust@hotmail.com.
Thank you for sharing your toughts.
diagnoseneeded 